I work. I take care of my daughter. I work. I clean the house. I get up in the middle of the night and take care of my daughter. I fill out forms and do paperwork and return phone calls to manage my daughter’s care. I work. I do laundry. I go to the grocery...
I’ve been trying to write something profound about how it felt to be at the Women’s March on Washington on January 21st but the best I can come up with is… Wow…. Seriously, if the word “wow” means mind blowing and life altering. I...
It feels as if 2016 kicked everyone in the gut. Every person I know has faced hardship and strife. Too many people died, from the famous like David Bowie and Prince, to the not so famous but dearly loved, like my friend Randen. Tragedy hit hard and across the world...
My daughter Rhia and I spent the last four days in Seattle at the Mitochondrial Disease Medical Conference. Hundreds of people with mitochondrial disease, their family, parents, doctors and researchers gathered at the SeaTac Hilton Double Tree Hotel to discuss...
Why is New Orleans so beautiful? Because the city is unique, fascinating, tragic, dramatic, eccentric, violent, happy, upbeat, decrepit and alive. There isn’t a street in that entire city that doesn’t tell a story. The people who live there take pride in...
I don’t know anyone who hasn’t had a difficult year. Relationships shattered; jobs vanished; housing collapsed; finances withered. Even health seemed difficult to maintain in 2013. What is it about this year that caused even the toughest amongst us to cry...
